This report presents independent research by the former National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care for South Yorkshire (NIHR CLAHRC SY). The views and opinions expressed are those of the authors, and not necessarily those of the NHS, the NIHR or the Department of Health.

CLAHRC Yorkshire and Humber would also like to acknowledge the participation and resources of our partner organisations. Further details can be found here

We are indebted to Barnsley Consumer Research Advisory Group and SUN:RISE the Service User Network of Sheffield Health and Social Care NHS Foundation Trust for co-producing the guidance. We thank all the people who generously shared their experiences.

Many thanks to Dan Wolstenholme and Beth Stevenson for creating the web version of the PPI guidelines.